Opening Up: "SPML" Surgery

This week I went in for my first surgery. It was a non-invasive Selective Percutaneous Myofascial Lengthening or “SPML” surgery for my hip adductors, hamstrings, gastrocs, biceps, and common flexors. I was also given alcohol blocks to the obturator nerve branches and biceps. These procedures will help prevent injuries by reducing the tension that could cause dislocations in my joints, especially my hips. Over time these procedures will help me attain a more normal body position as well as be more in control of my muscles and allow me to get the most out of my physical therapy. 

The surgery was in NJ and just took a few hours. I came out of it just fine and went home that day and now I have this fancy brace that I wear to helps stabilize my hip and trunk and keep my bones and joints growing in properly. I'm very excited.

Giving Back: Helping local LI Kids with CP

The Foundation has done a lot of giving recently and we wanted to share an update and some pics. We held a Giving Event at my school, where ordered custom equipment and donated money to the purchase of a wheelchair-accessible van.

The first piece of equipment was a chair for a little girl named Lila at my school. She is a very smiley and super positive little girl. We met her parents at the school’s Holiday event. They came to our booth to learn about the Foundation, bought an ornament, and then applied for aid a few weeks later. This chair is going to help in a big way at home when it comes to feeding, therapy, and playing with her older sister. 

We also met the Mother of the boy at my school. She applied for money towards a special-needs van she needs for her adopted son Brian. Brian is a happy, determined (and sharp-dressed) young man with a great smile. She actually had already purchased a special needs van one, but it was totaled in an accident and the other driver had no insurance, so we are really excited to be able to do this to help Brian get out more. 

A second chair for a girl I know named Gabriella came in and we were able to give it to her parents for her.

Overall, it was a wonderful day. Members of the school from the principal to the social workers, teachers, and aids all came out and the families couldn't stop thanking us. It felt wonderful to give back because I know how much it means.

Holiday 18: Ornaments

This year for our second annual ornament drive I had a lot of fun crafting together with Marlowe and my parents. The inspiration was a Christmas Tree so we filled our glass balls with little sprigs of pine covered in snow and I think they came out pretty great.

Back To Canada: My Latest Trip To Health In Motion

I just completed a 5 week physical therapy session up here in Toronto and want to report that I did really well. This was my 5th trip up here and I can’t thank my family and my therapists enough. It was a great program, I put in a lot of work, and I’m taking it all home to keep building on this momentum.

You can watch me doing therapy HERE and learn more about the Health In Motion Life Program HERE

Roll For Love Recap

WE ROLLED HARD
The Roll-A-Thon was a success. It was a lot of work, but it was also fun and unique. The team built on the format off the backs of our Board members and Friends of the Foundation. We got corporate sponsors involved for the first time, SMASHED OUR FUNDRAISING GOALS and when it all was all said and done we learned so much. We’re excited and already looking forward to doing it again next year.

Roll For Love

ROLL BACK IN TIME, WHILE HELPING PEOPLE WITH CP MOVE FORWARD

Remember the fun of skeeball as a kid? Now's you're chance to come out and play some games for good.

Purchase a ticket below and join us on Saturday August 25th:

+ Each ticket gets you unlimited skeeball
+ $1 of EVERY drink purchased will go to Madeline's Movement
+ We’ve set “Roll Goals” and when the group hits new levels, you help us unlock — BONUS CORPORATE DONATIONS!

PLUS, we have a ROLL FOR LOVE RAFFLE with a variety of prizes from restaurant gift certificates and gift bags, to NYC experiences and more!

Can’t make the event? You can still make a difference by donating. No contribution is too small. You can give right on our website.

ALL event tickets, raffle tickets and donations are 100% Tax Deductible!

Please join us and help make a difference for families affected by CP.

Thank you from Madeline and all of us at Madeline’s Movement. Can’t wait to see you there.

Madeline’s Movement is an IRS-approved 501c3 Non-Profit Organization | MadelinesMovement.org